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Been a While

25 Jan

It has been a while since our last post. Sorry. We have been very busy. Sold a house, moved, bought a new house, Nainoas 5th birthday, broken arm, remodeled the house, started new schools, moved into new house, Christmas, anniversary, New Years, Makoa 2nd birthday, trip to Hawaii… I sure I have missed something, but you get the point. Everyone is enjoying being settled, loving El Segundo, living on a cul de sac, and school. Couldn’t ask for more. Here are a few pictures over the last couple months. Enjoy!!!

Look Who’s Walking!

9 May

What can I say? We are truly blessed. Makoa continues to amaze us all, this time walking by 15 months. Here is a video Tiff took today of Makoa walking to pick up his baby. Enjoy!

Back to Torrance Memorial…

23 Mar

It was over a year ago that we had left Torrance Memorial with our dearest Makoa in hand to head home an start our journey as a family. Last Thursday, we had the opportunity to return to the hospital that all three of our children were born at for a very special reason, the birth of our niece, Rylie Jay Chandler.

Tiffany’s sister was scheduled to have a c-section on St. Patricks day so the entire family headed down to the hospital at 7am for the big day. Much has changed since we last left a year ago. Most notably, there is no swine-flu epidemic so children were allowed in the hospital. It reminded me that Makoa’s brother and sister didn’t meet him for an entire month after he was born. Besides the fact that the kids could be up in the labor and delivery room, it was also a chance for us to bring Makoa back to the NICU to see the nurses and doctors who got him going.

The highlight of the day was seeing Stacy, our most favorite nurse who was such a blessing to us. She is on maternity leave from the hospital, pregnant with her fourth baby, but she took time to come back and see Makoa. It was wonderful to spend some time with her and catch up. We are looking forward to reconnecting with her and the rest of her family when we move back down to the South Bay this summer.

After Stacy left, we stopped by the NICU to see Dr. Schwartz who not only remembered us, but was also very intrigued to see how Makoa was doing. He mentioned how he still uses us a case study with the undescended testis and that how it is so rare to have two genetic conditions (PWS & Ichthyosis). It was actually great seeing him and being able to thank him. It’s funny how either God softens your heart or those around you. We definitely didn’t get a long a first, but I’m very grateful for his diagnosis for Makoa and his quest to find out the best way to treat him.

The good news is that Tiffany was holding her own and surprisingly not emotional about returning. I think it may have been the birth of her niece and the fact that everything went perfectly. I was filled with joy but also felt a great deal of emotion, revisiting some of the experiences we had while at the hospital. While we were waiting for Tracy, we met a couple and watched their 4lb baby get wheeled off to the NICU. It was amazing how we immediately went into council mode, the husband had Tiffany back in recovery talking with his wife in no-time. The good news is their baby is doing well and that they had warning that he was undersized and they had been preparing themselves for what was to come.

All-in-all it was a great day. We saw the birth of our niece Riley Jay who is completely healthy. Everything went to plan and we had the opportunity to really enjoy the experience with Tracy and Cory. It’s kind of fun that Makoa is no longer the baby, we have another one taking that title, especially since he’s taken his first steps on his own! More to come on that….

For now, here is a photo of Riley Jay. She is cute as a button and you just want to gnaw on those cheeks. Look at those things!

9 months

13 Oct

Makoa is now 9 months and moving right along. He rolls all over the house to get to where he needs to go. He is now up on all fours and just about ready to go. He also loves to stand on everything. Loves to talk and tell his brother and sister lots of stories. Everybody is so impressed with him.
Oh and by the way he now has 6 teeth. All 4 top teeth at once poor little man!!!

Were back…

25 Aug

Sorry it has been so long. Linds and I had such a great time on our vacation. Missed the kids but so nice to be together. We needed it. Thanks to Grammy and Papa for taking care of our kids.
Makoa is getting so big, he is now
7 months, has two teeth, sitting up, and
getting stronger every day.
He is eating all kids of food, chicken, ground beef, ground turkey,black beans, pinto beans, lentials and all kinds of veggies. Could you beieve that most of it is all home made. Who would of thought. The healthiest kid I have had!!!
Any way such a happy little man he gets and gives so much love.
Here are some new pictures.

Were off… kids

5 Jul

Linds and I are off to Turks and Caicos with no kids. This is a much needed vacation, but going to be hard to leave my little kids behind. Altough no better people then Grammy and Papa to be watching them. They are in good hands. I am really going to try and let go and relax.
Makoa is now 6 months old and starting to try and sit and loves to smile.
Please say prayers for us to enjoy and have a safe trip.

Summer is here

19 Jun

It’s official Kaialani is done with Kindergarten. Nainoa is done with his first year of preschool. And summer is here. Yeah!!!
Makoa has started eating soilds and loving them. He continues to get stronger every day. He is so interested in the world around him.
Here are a few pictures, he is loving his cousin Kyle.

5 months

8 Jun

Can you believe it!!! Makoa is doing so well. He is well over 12 lbs, rolling over, cooing, so many smiles, and his head is just about under control.
He has been very busy with trips to Palm Springs, weekends at Grammy and Papa’s, and his first Dodger game. We are all so impressed with his fearless attitude and his endless smiles.
Thank you for all the good thoughts and prayers!!!

Back Home… Again…

16 May

Makoa is once again back home with us.  He was actually released Friday afternoon once the doctors determined that his oxygen levels were high enough that he could breathe on his own without assistance.  Makoa had a follow-up appointment with the pediatrician yesterday morning and they said he’s still junky but doing okay.

For us, it’s great to have him home, but we’re still on edge with him.  Makoa is still has a ton of mucus and a pretty nasty cough, but the nice thing is the hospital really equipped us with the tools we need to make sure he’s okay.  Like I said before, Tiffany has always wanted to be a nurse, so I tell her this is the perfect opportunity because she doesn’t have to go to school and she gets to perform all these procedures.  Granted, I think it’s a little different when it’s your child, but I always try to keep it light.

We’ve been doing a wide variety of treatments since Friday.  We’re using the nebulizer, the suction machine to get everything out, and the stethoscope to make sure his lungs are clear. It has been very taxing constantly worrying about if he’s breathing okay, does he have too much phlegm, is he comfortable.  Hopefully, this thing runs its course and he really starts to clear up this week.

One good thing from all of this is that the doctors have started thinking about a plan of attack for Makoa for the flu season this fall.  There’s nothing to do at the moment, but they have brought it up to us and have made it clear that they want to have some preventative measures in place before the bugs start flying around in September.  We shall see what happens.

I’m Outta Here!

May 12th 2010

12 May

Makoa is still in the hospital and at this point, there really isn’t a set timeline for when he might get to come home.  Tiffany has been by his side the entire time (except for a quick trip home for clothes and a shower) and was feeding me updates throughout the day at work.  It seems to be a “no news is good news” type of situation.  All of the tests that have come back thus far have been negative, and if the few outstanding tests that remain were to come back positive, it wouldn’t change how they are treating Makoa.  At this point, the doctors say he needs to “work through it himself” with a little help from them of course.

I headed off to the hospital after swinging by the house and grabbing Makoa’s shot.  Of course, when I arrived, he was extremely happy to see his Daddy as always.

As you can see, he’s still a sweet little man, even hooked up to all the tubes.  They are continuing to give him nebulizer treatments and suction him out every three to four hours.  They have provided us with both machines to take home with us and even taught Tiffany how to deep-suction Makoa entering through his nose.  I know she always wanted to be a nurse and it looks like she may get her chance.  She also been administering his growth-hormone while at the hospital, and of course feeding him as well.

I have been noticing a pattern that his wheezing increases after he feeds.  If he is anything like his Daddy or sister, there could be a chance that he has a milk allergy.  We brought it up to the doctor tonight about the family history, and she thought it might be a good idea to at least “try” taking him off milk-based formula and putting him on Alimentum, which is exactly what Kaialani was on when she was a baby.  Apparently, there is also a blood-test available that will let us know whether or not he has a milk or soy allergy.  It takes a couple weeks, but we can at least draw the blood while he’s in the hospital and get it cooking.

We will see what happens, but for now we just wait.  The good news is Makoa is stable, happy, and eating.  The bad news is that we have no idea when he will be heading home.  Please keep us in your prayers.